Pennies For Duchenne
Kyle (11) and Mark (10) Trull wanted to do something to help their "summer brother", JB. So in talking with their Mom, they came up with the idea to raise 1,000,000 pennies! They spent time coming up with a name and a slogan for their campaign, ideas on how to raise the pennies (including finding them on the ground) and what to use the money for. When asked what they wanted to raise the pennies for, they said "a cure and toys for the waiting room" at MGH where kids spend a lot of time between their appointments. They are going to put 10% of all pennies donated towards things for the waiting room and 90% towards research.
The objective of Pennies for Duchenne is to:
Raise awareness of DMD and JB's Keys (JB's Key #1)
Improve Quality of Care by making visits to MGH easier (JB's Key #2)
Fund research for a cure (JB's Key #3).
Thank you Wave Life Sciences!
May 8, 2017
A HUGE thank you to WAVE Life Science for their collection of 20,736 pennies!!
The employees from WAVE asked their children to fill zip lock bags of pennies for the penny drive for JB’s Keys. Our kids were excited to get involved and help raise money for toys and games for Mass General Hospital. Such a great cause!
WAVE Life Sciences is a genetic medicines company with an innovative and proprietary synthetic chemistry drug development platform that WAVE is using to design, develop and commercialize a broad pipeline of first-in-class or best-in-class nucleic acid therapeutic candidates for genetically defined diseases including Duchenne Muscular Dystrophy. WAVE is initially developing oligonucleotides that target genetic defects to either reduce the expression of disease-promoting proteins or transform the production of dysfunctional mutant proteins into the production of functional proteins.
Spofford Pond Service Project Update
January 31- February 3, 2017
As some of you may know, each year the sixth graders at Spofford Pond School engage in service opportunities to raise awareness for charities that students in sixth grade are involved with or interested in. Some become school-wide projects and some are geared specifically to sixth grade students.
During the school-wide assembly on Friday, January 27th, the entire school heard from two organizations that sixth graders (and their parents) are actively participating with: Global Emergency Care and Pennies for Duchenne.