JB Harvey with his mother, Beth, and sister, Caroline, in 2019.

OUR STORY

After receiving the news that JB was afflicted with Duchenne Muscular Dystrophy (DMD), his family decided they could not accept the future that was being offered to him and so many others. Shortly after the diagnosis, JB's Keys to DMD was founded on JB's second birthday, as a gift of their commitment to change JB's future. It became Beth's life mission to make a difference not only in JB's life, but in all boys with DMD and their families.

​Since JB's passing in August of 2023 at the age of fifteen due to complications of DMD, we have a renewed commitment to make a difference in those living with DMD and their families. Our organization has grown stronger and our vision is clear to fulfill the unmet needs of so many young men and their families.

As an organization we are dedicated to raising awareness of DMD while appropriating funds for quality of life initiatives as well as clinical care. 

​To date, JB's Keys has raised over four million dollars to support research, advocacy, clinics, conferences, and quality of life experiences. 

​Our success is ALL thanks to the amazing support of the board of directors, volunteers, and donors!